Pain, my constant companion

I had wanted to be here more regularly but the truth is that I have been in a flare up for a few weeks now. It's just slowly getting worse and worse, more joints and parts of my body are getting weak and that brings with it constant pain. I've tried to keep up with …

My hEDS – Learning and coping.

I think I made it pretty clear with my last post that my current (new) family doctor was not at all helpful. It was a disappointment to say the least but it did spark a fire under my little bunny butt to fight harder and move forward. So, I began to research the names and …

It’s been a while!

Lots has happened since I last wrote, mostly my Dr.s appointment was a complete bust!! Everything that could go wrong, did go wrong. I thought my new doctor knew about hEDS since he was the one to diagnose it but turns out that was wrong! I don't put much hope in others for assistance and …

Well, I did it!

I've just set up the second appointment with this new doctor and - I'm nervous! For the first time in a very long time i'm nervous. I had a good conversation with him the first meeting and i'm fearful of it going side ways. Every time i go to see someone i need to explain …

Thank you, for joining me today! :)

I've got oh so much to tell you, but I'm not sure just how much I will get to today! That's my life now you see, well that has been my life for a while now - I just may finally have an answer as to why! I have a new doctor!!! If you have …

Once more, with emotion!

I found out on Sunday (4 days ago) through an instant message program, that my father is in the hospital. At the time he was in some serious risk having an adverse reaction to radiation for a tumor on the side of his brain. This was the first I'd heard about a tumor, or radiation …

A mental break

I've been taking a break from writing lately, not a mental break from life, just from here. I don't know why exactly, I can't say I'm overly stressed or overwhelmed, it just felt like the thing that needed to be done. I do miss writing but I just don't exactly know how to put the …

There has been soo much going on, I don’t even know where to start!

To be honest I hardly remember where in the story you came in and what you need explained or expanded on. Yes, you ... my readers, if you have questions or blanks that need to be filled in, let me know! 🙂 But anyway, it has been a long time since i have wanted to …

Goodbye 2019

It has been an interesting month, lots of things good, and lots of things bad. This year we lost both of our cats, sisters. One passed in the end of summer and one we had to put down December 20th. The cats, especially the last one gone, were like service animals for my youngest. December …

Just one of those days …

Today is not a good day. Mentally or physically. I have a lot of people I need to talk to today and deal with and I don't want to handle ANY of them! I am already on people overload and I'm booking new appointment! *chuckle* My body feels like h3ll .... on new meds for …